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Are those from identified sources, but the samples do not include any identifying information, such as patients’ names or social security numbers. Rather, they are accompanied with codes. In such cases, although the repository (or its agent) retains the ability to link the research findings derived from a sample with the individual source by using the code, the investigator or researcher (or one reading a description of the research findings) would not be able to do so.

Sometimes also referred to as “reversibly anonymised”, “linkable” or “identifiable” samples.

Source Publication:
OECD, 2006, Creation and Governance of Human Genetic Research Databases, OECD. Paris.

Statistical Theme: Science and technology statistics

Created on Monday, July 23, 2007